World Sjögren’s Day

Four posts in one day?!?! Whoa, slow down.

I just wanted to make a quick note about Sjögren’s syndrome and how it has affected my life.

I was diagnosed in 2007 or 2008. You know it’s funny, I can tell you the exact dates of being diagnosed with scleroderma and PBC, but the only thing I remember about being diagnosed with Sjögren’s is that it was close to a friend’s birthday. I remember that because I had an eye patch and a cane at her birthday party. I had an eye patch because I had torn my cornea due to dryness.

That’s what Sjögren’s does; it makes you dry out. It attacks the moisture and mucous producing glands in the body, most often showing up as dry mouth and eyes, sometimes affecting internal organs, as everything in the body requires a proper fluid balance.

I have my lacrimal ducts cauterized to make the most of the tears I have. I use drops and a mouth spray and sometimes my kidneys go out of whack for awhile. It contributes to my fatigue and constant thirst.

Sjögren’s sucks.


One comment on “World Sjögren’s Day

  1. Bonny says:

    Kaarina I always appreciate your honesty and insights into your journey with PBC, scleroderma and Sjogrens syndrome. You are a fighter, bright, brave and beautiful. You continue to live a full life without self-pity. Bravo. Love your spirit!!

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